International and Turkish residents of Bodrum have shown strong support for Andrew Osborn’s 24-day walk from Bodrum to Fethiye to raise awareness of Down syndrome in Turkey and support for the children and families.
Osborn started the walk from the Mariners’ Cafe on Bodrum Harbor Square on April 28 after meeting supporters and distributing t-shirts. A fluent Turkish speaker, Osborn and Fery Elhadef, two of the three co-founders of the Turkish-registered association Down Türkiye, also met local press and television representatives and outlined the association’s aims and the Step-by-Step project.
On the previous day, residents of Yalıkavak gathered for a special brunch at the local restaurant Musti’s to focus attention on the project and give information on Down syndrome. Restaurant owners Brenda and Mustafa Ancin have an eldest son, Eli, aged 4, with Down syndrome and until this month they did not know about the support group for parents of children with Down syndrome in Turkey.
“This group is needed,” said Brenda, emphatically in her strong Irish accent. At that point she had only spoken to Andrew and Gün Osborn over the phone or by e-mail and heard how the Osborns struggled to find support when their eldest son Robert Cem, 17, was born in Istanbul.
“The attitudes haven’t changed in 17 years,” said Brenda. “I was criticized by some health professionals here when our baby was born for not testing for Down syndrome. I was told he had Down syndrome when we went for a checkup 10 days after he was born. I found myself alone in the hospital foyer falling apart after hearing the news and nobody wanted to help. They were totally negative about his condition. God knows how people in the villages get treated.”
Eli is a happy child running around the restaurant, evidently very comfortable with regular visitors and guests there. There is evidently strong support group for the family. “We had no support except from friends, customers and family around us,” said Mustafa.
“We now send him daily to the Turgutreis Center for disabled children where he has a great time with everyone. They are wonderful with him,” Brenda said, as she watched Eli pushing a baby chair around.
Mustafa and Brenda met Andrew Osburn on the morning of April 28 at the breakfast gathering in Bodrum Harbor, to see Osburn off for the start of his walk. Among the group were others with personal experience of family members with Down syndrome, including British woman Carol Wood, whose sister had Down syndrome. Karen and Tom Cree were there with one of their three daughters, 21-year-old Natalie, who has Down syndrome. Karen said the United Kingdom has systems to support families and children, but now after reaching the age of 18, adults with Down syndrome have less support and with the current economic cutbacks, they are losing their “incapacity to work” social benefits and being pushed to find work. “Natalie could work, if she has training in jobs that would suit her and people like her: jobs that are routine and repetitive and in a safe, secure and known environment,” Karen said, but added that training has also been cut. Karen said even in the U.K. the responsibility for care is being pushed back onto volunteers and family.
Route to show beauty of the southern shores
Thirty people gathered to meet Andrew Osburn and to walk the first kilometer with him. The Bodrum Hashers recreational running group was strongly represented, some members having known Osburn from his involvement in the same group in Istanbul. He said he has probably run over 425 runs and set 110 runs. “I reckon that is around 5,000 kilometers in hashing,” he said. He pointed out that he was taking the planned route at a far gentler pace, expecting to walk around 20 kilometers a day, and will be blogging and Facebooking along the way.
Osburn has researched much of the 400 kilometer route from Bodrum to Fethiye on foot, by car and with Internet mapping, as he intends to keep as close as possible to the shoreline and show the beauty of the route with photographs posted on the website and blog.
He has also been contacted with route suggestions and help from people along the way who will accompany him. From Marmaris he will actually be taking a boat trip from Marmaris to Sarıgerme, past where a seashore route was deemed impossible. A Gümüşlük resident, Colin Crabbe, said at the farewell breakfast that he and others planned to meet Osburn in a few days to walk a day or two with him. Osburn will meet Fethiye Hashers who will walk with him when he is expected to finish in Fethiye on May 21. A party will be held in Çalış on May 22.
The walk named “Step-by-Step project” is the first step of a program called “7 Years 7 Seasons” and the pioneering walk for all the other walks planned within that program. Andrew Osburn, in parallel with the mission of the association, which aims to reach out to all over Turkey and all the children with the syndrome in Turkey, will walk in seven different regions of the country within the next seven years. The association is also building up via the website an information bank in Turkish for families and health professionals, and organizing seminars and meetings.
Source: Hurryet Daily News




